Alice’s Ears Blog 

“Five years ago now we started a blog to record our beautiful, and remarkable daughter Alice’s journey from the silent to the hearing world.

Alice was diagnosed with Auditory Neuropathy Spectrum Disorder (ANSD) at around 18 months and now has two cochlear implants to help her to hear. She attends mainstream School and has just graduated from Auditory VerbalUK in Oxford. She still stuns us every day.

Alice’s younger brother, Oliver, was born in 2012 and within 24 hours we learned that the unthinkable had happened. Oliver too had inherited ANSD. And so the journey started again.

Along the way we have met many people, made many new friends and discovered how poor the accessibility of information is for Parents of children with ANSD. Understanding of the causes of the condition divides opinion and Parents are left wondering who to turn to map their way through this ever-changing land.

Alice’s Ears is now not only a diary of our experiences with Alice and Oliver – the highs (of which there have been many) and lows (of which there have been, thankfully, few) but also it hopefully serves as a resource for Parents and families on our journey. We can now also share journeys of other families navigating the wonderful world of ANSD here.”

To see how Ollie is getting on with his AVUK journey please read their latest blog post: